Patient Support Partner (80% to 100%)

Inactive

Reference Number: 895628-W
Type of placement: Contract, 6 Months
Location: Switzerland, North East / Central

Introduction:

  • The PSP is a patient facing expert for patients and families with Rare Diseases and functions as a liaison between patients and the company. He or she is a passionate patient-focused problem-solver, who can work with a diverse group of stakeholders to resolve issues and support patients.
  • The PSP will be responsible for engaging cross-functional internal stakeholders, Patient Groups, vendors, investigative site staff, and other external partners to support patients and their families who are considering participating in a clinical trial.  The PSP will solve hurdles related to logistics, travel, and schedules that could other prevent a patient and family from participating in the clinical programme(s).

 

Main Responsibilities:

  • Tracking, planning and processes
    • Develop communication workflows and processes between stakeholders, ie.  clinical trial sites, Patient Groups and vendors
    • Develop tracking and planning tools and metrics
    • Design and implement a Risk Management Plan related to activities within scope
  • Communication with patients and families
    • Function as the single point of contact between patient and sponsor
    • Respond to in-bound communications from patients, patient groups or physicians in a timely and responsible manner, in close coordination with teams (e.g. related to interest studies)
    • Willing to potentially work non-traditional hours as dictated by patient needs
    • Assist patient/family with clinical trial site communications, leveraging translators as needed
  • Cross functional internal and external working
    • Connect the patient with Patient Groups and additional resources as needed
    • Work with vendors to  develop lodging, financial, travel plans, assisting with temporary/permanent relocation as needed, including co-ordination of visas, travel logistics and other immigration requirements
    • Work with  teams to appropriately leverage functional expertise
    • Work with country affiliates to obtain regulatory and  legal guidance and ensure timely resolution of diverse issues
  • Set expectations with family/patients regarding clinical trial participation
  • Maintain patient confidentiality between patient/family and study teams ensuring data integrity and blinding are maintained

Qualifications and Experience:

  • Bachelor degree or higher
  • Professional experience in a relevant discipline (Life Science, Medicine, Pharmacy, Nursing, Social Work, Patient Organization)
  • Proven track record (ideally 5-10 years) of engagement with patients and Patient groups in the biopharmaceutical industry
  • Experience in Rare Disease drug development is an advantage
  • Ability to forge authentic, trust-based, mutually productive relationships with diverse stakeholders
  • Strong interpersonal skills with the ability to motivate others, influence without authority, negotiate conflict situations and effectively communicate across all levels within organisations
  • Highly collaborative team player, who fosters open communication and facilitates mutual understanding and cooperation between all stakeholders
  • Outstanding communication, analytical, and organizational skills
  • Fluency in written and spoken English
  • Relevant working/residency permit or Swiss/EU-Citizenship required

 

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